Thursday, March 24, 2011

Bad day followed by good day

Well, he is keeping me somewhat busy now so I m having to do a two in one today. Lets start with yesterday.. wow what a day! Although it started out nice, Ty woke up from about a 45 minute nap at about 2:00 pm after only getting about 6 hours of sleep the night before.  I think saying that he was irritable is an absolute under statement. Combined with a steroid that makes him moody and being a normal two year old  who has basically been tied to a bed since Wednesday, we could not put him down yesterday.. he screamed, hit, cried,and everything else you could imagine. I felt completely helpless. We both tried to stay patient and not get frustrated but it became very hard. One thing that I overlooked about the whole situation is the discipline aspect. You torment yourself because you think, well I don't want to discipline him right now because of course he is upset, with good reason.. he just had brain surgery, BUT then you think, well what is going to happen when we get home? Needless to say, we choose to pamper right now and deal later. The docs finally gave him benadryl and tylenol to try to calm him down. He finally fell asleep at 7 and mommy and daddy were quickly after. Ty slept from about 7-7 and has been the happiest baby today. This morning, they clamped his drain. This means that he is hooked up to the drain but it is not being used, so he can move positions, we can play with him, hold him, etc. WOW what a difference that makes!! He hasn't stopped laughing. We also had some great friends stop by and that perked him up even more. If all goes well, we actually may get out of here by Saturday. As far as today goes, his day will soon turn sour when the IV team comes back to put one more IV in him as he is to have one more follow up MRI on his spine this evening, followed by a CT Scan tomorrow morning. What a brave little boy I have! 4 MRI's, brain surgery and a CT SCAN.. How crazy is that?  If I don't blog tonight, you will know it is because I am consoling a sweet baby boy tonight :-)

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